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  • Luciana Berger – 2016 Parliamentary Question to the Department of Health

    Luciana Berger – 2016 Parliamentary Question to the Department of Health

    The below Parliamentary question was asked by Luciana Berger on 2016-05-23.

    To ask the Secretary of State for Health, what estimate he has made of the number of people with learning disabilities residing in long-stay hospitals in each year since 2013.

    Alistair Burt

    The number of patients in an inpatient setting with learning disabilities, autistic spectrum disorder and/or behaviour that challenges on 30 September 2013 was 3,250, on 30 September 2014 was 3,230 and on September 2015 was 3,000 (Learning Disability Census: England 2013/14/15).

  • Fiona Bruce – 2016 Parliamentary Question to the Department of Health

    Fiona Bruce – 2016 Parliamentary Question to the Department of Health

    The below Parliamentary question was asked by Fiona Bruce on 2016-05-23.

    To ask the Secretary of State for Health, with reference to the article by Marta N. Shahbazi et al, entitled Self-organisation of the human embryo in the absence of material tissues, Nature Cell Biology (2016) and by Alessia Deglincerti et al, entitled Self-organisation of the in vitro attached human embryo, Nature 553, 251 to 254, of 12 May 2016, if he will instruct the Human Fertilisation and Embryology Authority to require prolonged culture for up to 13 days or longer of any human embryos generated by (a) pronuclear transfer and (b) spindle-chromosomal complex transfer prior to clinical application of either of these techniques.

    Jane Ellison

    It will be for the Human Fertilisation and Embryology Authority, as the United Kingdom national regulatory body, to determine what evidence must be provided by clinics seeking a licence to provide mitochondrial donation treatment to patients, and any conditions that are to be placed on the licence.

    The Human Fertilisation and Embryology Act 1990, as amended, prohibits the keeping or using of embryos for longer than 14 days or the appearance of the primitive streak, whichever is the earlier.

  • Teresa Pearce – 2016 Parliamentary Question to the Department of Health

    Teresa Pearce – 2016 Parliamentary Question to the Department of Health

    The below Parliamentary question was asked by Teresa Pearce on 2016-05-23.

    To ask the Secretary of State for Health, what steps his Department is taking to raise public awareness of Lyme disease and of the measures that can be taken to reduce the risk of infection.

    Jane Ellison

    The existing National Institute for Health and Care Excellence (NICE) guidance supports primary care doctors in managing Lyme disease but to further strengthen the evidence base we have commissioned NICE to develop guidelines for the recognition and treatment of Lyme disease; this is expected in June 2018.

    Public Health England (PHE) provides information on Lyme disease and tick awareness to the medical profession and the public, holds regular medical training days, and works with Lyme Disease Action to support the needs and interests of patients.

    NHS Choices also publishes information on its website to raise awareness of Lyme disease and encourage timely medical consultation because early diagnosis and treatment of Lyme disease is the best way of limiting complications from infection.

    The number of human cases can be reduced by raising public awareness of how to avoid tick bites, and by environmental measures in public places to reduce the long grass and scrub which harbor ticks. PHE works with interested local authorities to raise tick awareness, and has produced joint public information with local authorities in areas such as the New Forest with a significant incidence of Lyme disease.

    The number of laboratory confirmed cases of Lyme disease in England and Wales varies annually, in 2013 there were 878 and in 2014 there were 730, but the majority of diagnoses are made clinically by general practitioners and those figures are not recorded.

    Patients with late or complicated Lyme disease may be diagnosed in a variety of specialist clinics, and the numbers are not recorded. Based on the clinical information supplied with the laboratory request, only a small proportion of the annual number of cases fall into this category.

    There is no clear definition for chronic Lyme disease, and no general acceptance of what the term means, so no data is available.

  • Teresa Pearce – 2016 Parliamentary Question to the Department of Health

    Teresa Pearce – 2016 Parliamentary Question to the Department of Health

    The below Parliamentary question was asked by Teresa Pearce on 2016-05-23.

    To ask the Secretary of State for Health, what steps his Department is taking to raise awareness of Lyme disease amongst medical professionals.

    Jane Ellison

    The existing National Institute for Health and Care Excellence (NICE) guidance supports primary care doctors in managing Lyme disease but to further strengthen the evidence base we have commissioned NICE to develop guidelines for the recognition and treatment of Lyme disease; this is expected in June 2018.

    Public Health England (PHE) provides information on Lyme disease and tick awareness to the medical profession and the public, holds regular medical training days, and works with Lyme Disease Action to support the needs and interests of patients.

    NHS Choices also publishes information on its website to raise awareness of Lyme disease and encourage timely medical consultation because early diagnosis and treatment of Lyme disease is the best way of limiting complications from infection.

    The number of human cases can be reduced by raising public awareness of how to avoid tick bites, and by environmental measures in public places to reduce the long grass and scrub which harbor ticks. PHE works with interested local authorities to raise tick awareness, and has produced joint public information with local authorities in areas such as the New Forest with a significant incidence of Lyme disease.

    The number of laboratory confirmed cases of Lyme disease in England and Wales varies annually, in 2013 there were 878 and in 2014 there were 730, but the majority of diagnoses are made clinically by general practitioners and those figures are not recorded.

    Patients with late or complicated Lyme disease may be diagnosed in a variety of specialist clinics, and the numbers are not recorded. Based on the clinical information supplied with the laboratory request, only a small proportion of the annual number of cases fall into this category.

    There is no clear definition for chronic Lyme disease, and no general acceptance of what the term means, so no data is available.

  • Andrew Percy – 2016 Parliamentary Question to the Department of Health

    Andrew Percy – 2016 Parliamentary Question to the Department of Health

    The below Parliamentary question was asked by Andrew Percy on 2016-05-23.

    To ask the Secretary of State for Health, what assessment he has made of the effectiveness of the Advanced Cancer Care Equality Strategy for Gender and Sexual Minorities study in improving palliative and end-of-life care for LGBT people.

    Ben Gummer

    We are committed to ensuring that everyone who is at, or approaching, the end of life has access to high quality, compassionate care that is tailored to their individual needs and preferences.

    Many people already receive excellent end of life care but, as shown by the Care Quality Commission’s (CQC) recent review of inequalities in end of life care, A different ending: Addressing inequalities in end of life care, there is clearly more that can be done to ensure that all patients experience good quality care, regardless of their age, gender, race, condition, sexual orientation or gender identity.

    We welcome the CQC’s review and we will work together with NHS England to use its findings, and those of the ACCESSCare: Advanced Cancer Care Equality Strategy for Sexual Minorities study, when it is published, to inform ongoing work to reduce inequalities in access to care.

  • Andrew Percy – 2016 Parliamentary Question to the Department of Health

    Andrew Percy – 2016 Parliamentary Question to the Department of Health

    The below Parliamentary question was asked by Andrew Percy on 2016-05-23.

    To ask the Secretary of State for Health, if he will take steps to improve public and professional awareness and understanding of surrogacy.

    Jane Ellison

    Surrogacy is a complex issue, the legislation about which has not been significantly addressed by respective administrations since the Surrogacy Arrangements Act was introduced in 1985. The Government recognises the arguments for the need for a review, and we have therefore asked the Law Commission, as part of the consultation on its 13th work programme this summer, to consider including a project on surrogacy.

    The Department has not issued guidance about surrogacy to professional groups or the Children and Family Court Advisory and Support Service (CAFCASS). The Government recognises surrogacy as an important option for some people wishing to start a family and is currently considering how best to clarify the current legal arrangements for intended parents, surrogates and their families. The CAFCASS campaign to increase awareness of Parental Orders is ongoing and targeted at health workers, local authority registration staff and surrogacy agencies. It will be evaluated in full upon completion in autumn 2016; in-campaign monitoring indicates its messaging is reaching the target audience.

  • Andrew Percy – 2016 Parliamentary Question to the Department of Health

    Andrew Percy – 2016 Parliamentary Question to the Department of Health

    The below Parliamentary question was asked by Andrew Percy on 2016-05-23.

    To ask the Secretary of State for Health, what guidance his Department has published on surrogacy for professionals working in midwifery, hospitals, fertility clinics and the Children and Family Court Advisory and Support Service.

    Jane Ellison

    Surrogacy is a complex issue, the legislation about which has not been significantly addressed by respective administrations since the Surrogacy Arrangements Act was introduced in 1985. The Government recognises the arguments for the need for a review, and we have therefore asked the Law Commission, as part of the consultation on its 13th work programme this summer, to consider including a project on surrogacy.

    The Department has not issued guidance about surrogacy to professional groups or the Children and Family Court Advisory and Support Service (CAFCASS). The Government recognises surrogacy as an important option for some people wishing to start a family and is currently considering how best to clarify the current legal arrangements for intended parents, surrogates and their families. The CAFCASS campaign to increase awareness of Parental Orders is ongoing and targeted at health workers, local authority registration staff and surrogacy agencies. It will be evaluated in full upon completion in autumn 2016; in-campaign monitoring indicates its messaging is reaching the target audience.

  • Andrew Percy – 2016 Parliamentary Question to the Department of Health

    Andrew Percy – 2016 Parliamentary Question to the Department of Health

    The below Parliamentary question was asked by Andrew Percy on 2016-05-23.

    To ask the Secretary of State for Health, what assessment he has made of the extent of access to biological treatments for people with inflammatory bowel disease.

    George Freeman

    The National Institute for Health and Care Excellence (NICE) has recommended four different biological drugs for the treatment of inflammatory bowel disease (IBD), the collective term for Crohn’s disease and colitis, for use after the failure of conventional therapies or in patients for whom such therapies are not appropriate. The National Health Service is legally obliged to fund medicines and treatments recommended by NICE’s technology appraisals.

    Although information concerning the exact number of people with IBD who have been treated with biological drugs in each of the last five years is not available, and no specific assessment of access has been made, some data are collected as part of the IBD audit. The IBD audit programme is commissioned by the Healthcare Quality Improvement Partnership on behalf of NHS England and Wales (with additional funding from Healthcare Improvement Scotland), as part of the National Clinical Audit and Patient Outcomes Programme, and carried out by the Royal College of Physicians.

    The biological therapies part of the IBD audit aims to assess nationally: the efficacy of biological therapies in the treatment of IBD; the safety of biological therapies in the treatment of IBD; and IBD patients’ views on their quality of life at defined intervals throughout their use of biological therapies. The latest round of audit findings, published in September 2015, showed treatment continued to be effective and that patients were receiving treatment with biological therapies at earlier stages of disease. More information can be found at the following link:

    www.rcplondon.ac.uk/projects/ibd-biological-therapy-audit

    “

  • Andrew Percy – 2016 Parliamentary Question to the Department of Health

    Andrew Percy – 2016 Parliamentary Question to the Department of Health

    The below Parliamentary question was asked by Andrew Percy on 2016-05-23.

    To ask the Secretary of State for Health, what assessment he has made of the effectiveness of the campaign by the Children and Family Court Advisory and Support Service to raise awareness of the importance of parental orders for new parents and surrogates.

    Jane Ellison

    Surrogacy is a complex issue, the legislation about which has not been significantly addressed by respective administrations since the Surrogacy Arrangements Act was introduced in 1985. The Government recognises the arguments for the need for a review, and we have therefore asked the Law Commission, as part of the consultation on its 13th work programme this summer, to consider including a project on surrogacy.

    The Department has not issued guidance about surrogacy to professional groups or the Children and Family Court Advisory and Support Service (CAFCASS). The Government recognises surrogacy as an important option for some people wishing to start a family and is currently considering how best to clarify the current legal arrangements for intended parents, surrogates and their families. The CAFCASS campaign to increase awareness of Parental Orders is ongoing and targeted at health workers, local authority registration staff and surrogacy agencies. It will be evaluated in full upon completion in autumn 2016; in-campaign monitoring indicates its messaging is reaching the target audience.

  • Andrew Percy – 2016 Parliamentary Question to the Department of Health

    Andrew Percy – 2016 Parliamentary Question to the Department of Health

    The below Parliamentary question was asked by Andrew Percy on 2016-05-23.

    To ask the Secretary of State for Health, how many people with (a) Crohn’s disease and (b) ulcerative colitis have been treated with biological drugs in each of the last five years.

    George Freeman

    The National Institute for Health and Care Excellence (NICE) has recommended four different biological drugs for the treatment of inflammatory bowel disease (IBD), the collective term for Crohn’s disease and colitis, for use after the failure of conventional therapies or in patients for whom such therapies are not appropriate. The National Health Service is legally obliged to fund medicines and treatments recommended by NICE’s technology appraisals.

    Although information concerning the exact number of people with IBD who have been treated with biological drugs in each of the last five years is not available, and no specific assessment of access has been made, some data are collected as part of the IBD audit. The IBD audit programme is commissioned by the Healthcare Quality Improvement Partnership on behalf of NHS England and Wales (with additional funding from Healthcare Improvement Scotland), as part of the National Clinical Audit and Patient Outcomes Programme, and carried out by the Royal College of Physicians.

    The biological therapies part of the IBD audit aims to assess nationally: the efficacy of biological therapies in the treatment of IBD; the safety of biological therapies in the treatment of IBD; and IBD patients’ views on their quality of life at defined intervals throughout their use of biological therapies. The latest round of audit findings, published in September 2015, showed treatment continued to be effective and that patients were receiving treatment with biological therapies at earlier stages of disease. More information can be found at the following link:

    www.rcplondon.ac.uk/projects/ibd-biological-therapy-audit

    “