David Crausby – 2016 Parliamentary Question to the Department of Health

The below Parliamentary question was asked by David Crausby on 2016-01-21.

To ask the Secretary of State for Health, what steps his Department is taking to improve access to specialist care for people with muscular dystrophy.

Jane Ellison

Through the Mandate we have asked NHS England to make measurable progress towards making our health service among the best in Europe at supporting people with long-term conditions such as muscular dystrophy, to live healthily and independently, with much better control over the care they receive.

NHS England commissions specialised neurological services at a national level, including for patients with muscular dystrophy. The neurosciences service specifications set out that patients with neuromuscular conditions, such as muscular dystrophy should have access to, including a multidisciplinary team (MDT) to will assess, diagnose and provide support. The MDT team will include neuromuscular consultants, neuromuscular physiotherapists, specialist nurses, occupational therapists, speech and language therapists and other care professionals. One of the key service outcomes of the specification is that all patients with long-term neurological conditions have an individualised care plan.