Tag: Press Release

  • PRESS RELEASE : Government delivers on pledge for £50 million MND research funding [December 2022]

    PRESS RELEASE : Government delivers on pledge for £50 million MND research funding [December 2022]

    The press release issued by the Department of Health and Social Care on 12 December 2022.

    • The full £50 million pledged for MND research is being placed into the hands of researchers as quickly as possible with further awards made today.
    • £29.5 million of government funding to be invested immediately through specialist research centres and partnerships with leading researchers.
    • A further £20.5m to accelerate work on the most promising treatments has also been committed for use in MND research, available through open call processes.

    The government will cut red tape in order to speed up research into Motor Neurone Disease (MND) across the UK, with immediate investment so NHS patients can benefit from cutting edge treatment and medicines, the Health and Social Care Secretary, Steve Barclay, and Business Secretary, Grant Shapps, have announced today.

    Work being done in the field of MND research has highlighted the impact that cutting-edge research can have, but also on the progress still to be made to help sufferers of this debilitating condition.

    Removing red tape will ensure funding reaches frontline researchers more quickly, enabling faster progress towards treatments. This will be done through Biomedical Research Centres – which are collaborations between academics and clinicians to translate breakthroughs in the lab into potential new treatments, diagnostics and medical technologies – to get funding to the most promising researchers who are already working in MND.

    As well as this, the National Institute for Health and Care Research (NIHR) and Medical Research Council (MRC) will work together to ensure proposals are referred to the most appropriate scheme for consideration at the early idea stage.

    This presents an opportunity for outstanding researchers to get further funding beyond the initial £50 million to get new treatments from the lab to patients.

    The Health and Social Care Secretary will also host leading researchers and patient groups at a roundtable to discuss their research on MND and how they can access this additional funding and ensure bids are made – this will ensure an open dialogue of communication.

    Health and Social Care Secretary Steve Barclay said:

    Motor neurone disease can have a devastating impact on people’s lives, and I’m determined to help accelerate research to find a cure and develop innovative treatments.

    We’ve already invested millions to improve treatments and our understanding of this condition but there’s more we can do and that’s why I’m now slashing red tape to fast-track funding and ensure it reaches frontline researchers more quickly.

    I’m grateful to the United to End MND campaign, for their work raising awareness and I warmly congratulate Kevin Sinfield on his epic achievement completing seven ultra-marathons, as well as remembering the late Doddie Weir for his outstanding contribution over the past five years.

    Secretary of State for Business, Energy & Industrial Strategy Grant Shapps said:

    Some of the UK’s brightest and best scientific minds are battling to find treatments – and one day, a cure – for the cruel and devastating condition that is Motor Neurone Disease.  We have invested millions of pounds in supporting them in that fight, but we are committed to doing more.

    Today’s measures will cut unnecessary red tape, getting that vital funding to the front line faster, as well as investing more in the crucial work that our world-leading scientists and researchers are doing.

    £50 million was committed to MND research over the next five years by the Department of Health and Social Care and the Department for Business, Energy and Industrial Strategy last year, reinforcing progress being made by the UK’s world-leading scientists. Recent successes include stem cell research by the Francis Crick Institute to investigate the molecular processes that cause the disease; and the development by the UK Dementia Research Institute (DRI) of a new form of testing for MND, which is now being used in a clinical trial to assess the effectiveness of a new treatment.

    Today the government is accelerating £29.5 million of the committed funding into specialist research centres and partnerships with leading researchers to reduce bureaucracy and help researchers access funding as quickly as possible.

    The £29.5 million package includes:

    • £8 million for early phase clinical research for MND, speeding up innovative new treatments for patients through the NIHR Biomedical Research Centres, specialist research centres which bring together experts to translate scientific breakthroughs into potential treatments for patients.
    • £12.5 million to support the best discovery science at the UK Dementia Research Institute (DRI), recognising the fact that the underlying mechanisms of MND are shared with frontal temporal lobe dementia, presenting new possibilities for targeted drug development.
    • A £3 million translational accelerator investment from MRC (to be matched later by another £3 million from NIHR) to join up these investments with other relevant programmes such as the MND collaborative and the UK Dementias Platform (DPUK).
    • £1 million of government funding which was allocated in June 2022 enhance coordination of UK MND research by setting up a MND Collaborative Partnership, bringing together people living with MND, charities and MND researchers across the UK to discover meaningful MND treatments. This is co-funded by the medical research charity LifeArc and MND patient charities MND Association, My Name’5 Doddie Foundation and MND Scotland.
    • £2 million additional investment in this MND Collaborative Partnership to focus on gathering and analysing existing data on the condition to explore the underlying causes of MND and help develop breakthrough new treatments.

    The remainder of the committed £50 million MND funding is available for researchers to access via NIHR and MRC. To support this work, the government has today published a joint NIHR/MRC Highlight Notice inviting outstanding researchers across the academic and life science sector to submit applications to an open call for the highest quality projects, responding to progress in science so breakthroughs can reach patients as quickly as possible.

    NIHR and MRC are particularly looking for the opportunity to see ‘pull-through’ of treatments with early promise into clinical trials, as they emerge from the initial funding in this space. The NIHR and MRC already fund programmes across the whole translational research pipeline and anticipate funding scientifically excellent applications that will have a positive impact on patients’ lives, with the anticipation that this will increase the funded applications further over coming years over and above the initial commitment.

    The funding will support researchers to better understand the disease and its related conditions, develop and test treatments and eventually give people living with the condition the chance of a better quality of life, and more good years with their loved ones.

    CEO of the NIHR Professor Lucy Chappell said:

    Today’s significant commitment to delivering Motor Neurone Disease research is a hugely welcome next step towards really tackling this debilitating illness.

    This detailed plan makes full use of our world-leading health research sector, and gives us the best chance of making truly impactful findings and treatments.

    Health research saves lives. We look forward to working with our researchers, partners and people living with Motor Neurone Disease to ensure the work outlined today is the best it can be.

    The government will continue to harness expertise and innovation, such as the work that is already underway at NIHR Sheffield Biomedical Research Centre where scientists are trialling new treatments to treat the condition. Promising trials have recently shown a delayed progression of the disease when the new drugs were given to patients.

    The funding builds on the Life Sciences Vision, published in 2021 and sets out the government’s commitment to speed up innovative neurodegeneration and dementia research, so that new treatments reach patients faster.

    Dr Catriona Crombie of LifeArc, on behalf of the MND Collaborative Partnership said:

    The UK is leading the way in MND research. This new £2 million funding awarded to the MND Collaborative Partnership will help us to unlock the potential in patient data and could reveal new clues for scientists and researchers to develop new treatments.

    We are grateful the government has listened to the coalition of people living with MND, the MND scientific community and MND charities who have highlighted how vital and urgent MND research progress is. We look forward to continuing to work together to ensure the funding plans outlined today have the biggest impact and drive new treatments towards people with MND, fast.

    This boost to MND research is part of wider funding into neurodegeneration research, including funding to support pioneering clinical trials which have led to major advances in how the disease is understood. This includes improving our understanding of how different types of MND are passed on genetically which could unlock new treatment options for patients using gene therapy. The government will continue to harness expertise and innovation, such as the work that is already underway at NIHR Sheffield Biomedical Research Centre where scientists are trialling new treatments to treat the condition. Promising trials have recently shown a delayed progression of the disease when the new drugs were given to patients.

    The funding builds on the Life Sciences Vision, published in 2021 and sets out the government’s commitment to speed up innovative neurodegeneration and dementia research, so that new treatments reach patients faster.

  • PRESS RELEASE : Northern Ireland Executive needed to invest in health services – Colm Gildernew [November 2022]

    PRESS RELEASE : Northern Ireland Executive needed to invest in health services – Colm Gildernew [November 2022]

    The press release issued by Sinn Fein on 25 November 2022.

    Sinn Féin spokesperson for health Colm Gildernew has said an Executive is needed to begin to tackle the growing pressures in the health and social care system and to invest in health services.

    Speaking in response to comments made by the Health Permanent Secretary Peter May today, Colm Gildernew said;

    “It is clear we need sustained investment in our health and social care services to ensure we can meet the health needs of the community.

    “Over a decade of Tory austerity has undermined and underfunded our public services and made us less able to deal with crises and collapse of services.

    “That is why as Minister for Finance Sinn Féin’s Conor Murphy proposed a three-year budget to prioritise health and invest an additional £1 billion in the health service.

    “We need an Executive in place to begin to tackle the growing pressures in the health system and ensure people can access care when they need it.

    “The DUP need to end their boycott and get back to work around the Executive table with the other parties.”

  • PRESS RELEASE : Linda Dillon commends ‘steadfastness and resilience’ of McAnespie family [November 2022]

    PRESS RELEASE : Linda Dillon commends ‘steadfastness and resilience’ of McAnespie family [November 2022]

    The press release issued by Sinn Fein on 25 November 2022.

    Sinn Féin MLA Linda Dillon has commended the ‘steadfastness and resilience’ of the family of Aidan McAnespie in their search for truth and justice following his killing by a British soldier.

    Speaking after the former British soldier was found guilty of the manslaughter of Aidan McAnespie in the High Court today, the Mid Ulster MLA said:

    “I want to pay tribute to Aidan McAnespie’s family whose long and painful campaign for truth and justice has been a source of inspiration for so many.

    “Despite years of delays, lies and cover-up by the British state, they have shown remarkable courage, determination, and dignity over the past 34 years.

    “Today belongs to the McAnespie family.

    “They never gave up in the search for justice for Aidan, who after years of being harassed by the British Army and RUC, was shot dead by a British soldier in Aughnacloy on his way to the local Gaelic ground.

    “Rulings like today’s one is exactly why the British Government wants to hide the role of its state forces who killed Irish citizens by forcing through an amnesty.

    “The British government’s cruel, offensive and callous Legacy Bill should be scrapped and mechanisms to give truth and justice to families agreed at Stormont House in 2014 should be implemented.

    “Sinn Féin will continue to stand with the McAnespie family and offer our ongoing solidarity.”

  • PRESS RELEASE : DUP boycott of Executive could cost rate payers millions – Leanne Peacock [November 2022]

    PRESS RELEASE : DUP boycott of Executive could cost rate payers millions – Leanne Peacock [November 2022]

    The press release issued by Sinn Fein on 24 November 2022.

    Sinn Féin Group leader on Causeway Coast and Glens Leanne Peacock has highlighted her concern that council may not receive its Rates Support Grant due to the DUP continuing to boycott the Executive.

    This will put further pressure on council finances moving into the rates setting process.

    Leanne Peacock said, “It is unacceptable that the DUP’s failure to do their job could result in a hole in council’s budget costing rates payers millions.

    “I have written to the Department’s Permanent Secretary who has confirmed the budget for the Rates Support Grant can not be agreed due to the continued absence of a functioning Executive.

    “The people of Causeway Coast and Glens should not be punished due to the DUP’ failures. The DUP’s continued boycott must end now.”

    The response from the Department of Communities confirms that no Executive means departments are working from a ‘contingency planning envelope’ resulting in the budget for the Rates Support Grant not being able to be agreed for 2022/’23.

    Councillor Peacock continued “Minister Hargey showed what support can be given when ministers are in post and able to make decisions.

    “In 2021/’22 Minister Hargey secured nearly £22m to help keep rates down for workers and families.

    “During the Covid pandemic Minister Hargey secured over £102m for councils.

    “Before being forced to leave office the minister was able to unlock £33m of that covid support so it can now be used to support ongoing recovery in the context of councils’ increased operating costs.

    “It’s time the DUP ended their reckless boycott which is having a disastrous impact on workers and their families. The DUP need to get back into the Executive so we can take the decisions needed which will help people through this cost of living crisis.”

  • PRESS RELEASE : Families need energy support payment urgently – John Finucane [November 2022]

    PRESS RELEASE : Families need energy support payment urgently – John Finucane [November 2022]

    The press release issued by Sinn Fein on 24 November 2022.

    Sinn Féin MP John Finucane has called on the British government to make the Energy Support payments urgently to hard pressed families after six months of delay.

    The North Belfast MP said:

    “It’s unacceptable that people are still waiting on clarity from the British government when they will receive the energy support payments which they were promised over six months ago.

    “People are sick and tired of the dithering and delay by the British government over this much needed payment at a time when energy bills are through the roof.

    “The reality is that the DUP’s boycott of the Executive has prevented people from receiving this payment which they so badly need.

    “This delay is unacceptable for families trying to make ends meet and it is essential that this is paid out urgently.”

  • PRESS RELEASE : Misleading National Lottery adverts probed by Public Accounts Committee chairperson Brian Stanley [November 2022]

    PRESS RELEASE : Misleading National Lottery adverts probed by Public Accounts Committee chairperson Brian Stanley [November 2022]

    The press release issued by Sinn Fein on 24 November 2022.

    Public Accounts Committee chairperson, Sinn Féin TD Brian Stanley, has called for stricter regulation and controls of the National Lottery to ensure that ‘good causes’ receive a share of unclaimed prize money.

    Between 2016 and 2021, the National Lottery operator diverted 98% of unclaimed prize money (€122m) towards its own marketing and advertising campaigns, with just 2% going towards topped-up prize money.

    Teachta Stanley said:

    “I am extremely concerned that such a significant percentage (98%) of unclaimed prize money has been diverted by the National Lottery towards its marketing and advertising campaigns when the licence stipulates that the operator must put the money towards topped-up prizes.

    “The issue is that the licence permits the operator to also divert some of the money towards its own incremental marketing. The regulator confirmed that they have not raised this issue and the operator has taken complete advantage of this situation.

    “I am frustrated by the lack of action by the regulator and the committee will be proposing to the Department that the licence is amended to ensure that ends.

    “During the hearing, I proposed to the regulator that it be considered that any unclaimed prize money be donated towards ‘good causes’ if they are uncollected after 180 days, which is done in other countries. I feel it is wrong that 98% of unclaimed prize money goes towards marketing and advertising.

    “Following much discussion with the regulator, I was also not convinced by the National Lottery’s advertisement claim that 90% of ticket sales ‘go back to the community’.

    “In fact, the committee found that only 27% went back to ‘good causes’.

    “The claim that 90% goes ‘back to the community’ includes retailers and businesses that sell the tickets, prize money itself and also includes the unclaimed prize money, which ironically finances the adverts themselves. I am of the view that the advert is very misleading.

    “It was also said to the committee that the operator had breached its licence in 2021 by contacting 48 individuals that had chosen to self-exclude themselves from gambling and that no sanction or fine was imposed by the regulator.

    “This was quite a serious breach of the licence; I imagine these are individuals looking to control their gambling habits and the National Lottery were still able to contact and solicit their involvement.

    “We need to see stronger enforcement by the regulator and stricter controls within the licence and the committee will be proposing these changes in our report to the Minister.”

  • PRESS RELEASE : Immediate funding needed to tackle delays in discharging patients – Ní Chuilín [November 2022]

    PRESS RELEASE : Immediate funding needed to tackle delays in discharging patients – Ní Chuilín [November 2022]

    The press release issued by Sinn Fein on 24 November 2022.

    Sinn Féin MLA Carál Ní Chuilín has called for funding to be allocated to social care to address delays in discharging patients from hospitals.

    The North Belfast MLA was speaking after a meeting between representatives of the five main parties and the Permanent Secretary of the Department of Health.

    Carál Ní Chuilín said:

    “I told Peter May today that we need immediate and additional funding for social care to address delays in discharging patients from hospitals.

    “This would enable more patients to be discharged from hospitals and free up beds for those who need immediate hospital care.”

    And Carál Ní Chuilín called for more financial assistance for social care workers. She continued:

    “There is a need to support domiciliary care workers in rural communities whose mileage costs are not being met.

    “The costs for these carers is going through the roof with the soaring price of fuel.

    “They are having to pay to go to work when they’re providing care in the community.

    “These additional costs are driving workers out of social care and the department needs to ensure these frontline staff can afford to continue to work.

    “We need an Executive formed now so that we can secure a three year Budget an invest an extra £1 billion in our health service to hire more doctors and nurses, tackle waiting lists and fund vital services.

    “The DUP should end its boycott now, and work with the rest of us around the Executive table to make health a priority. That’s what people voted for.”

  • PRESS RELEASE : Tory budget highlights the cost of DUP boycott – Conor Murphy [November 2022]

    PRESS RELEASE : Tory budget highlights the cost of DUP boycott – Conor Murphy [November 2022]

    The press release issued by Sinn Fein on 24 November 2022.

    Sinn Féin MLA Conor Murphy has said hospital waiting lists will grow, companies will go out of business and jobs will be lost because of the DUP’s refusal to allow the Executive to set a budget.

    Responding to the budget set by the British Government, Conor Murphy said:

    “A three-year budget which I proposed to the Executive should have been agreed months ago to enable proper planning of public services.

    “The DUP’s refusal to allow the Executive to set a budget and its subsequent collapse of the institutions has left departments struggling to control spending and now a one-year budget has been set towards the end of the financial year. This is hugely damaging for public services, particularly the health service which desperately needs financial certainty.”

    On business rates the former Finance Minister said:

    “The Executive provided a three-month rate reduction for a number of businesses, including retail and hospitality. All other businesses received a one-month reduction. Ulster University were commissioned to identify those that should be targeted for additional support in the final budget.

    “However, the Tory budget has not provided additional rates relief for businesses. Many businesses are struggling with rising costs and they will not survive without additional support.

    “That crucial support has been denied by the DUP’s blockade of the Executive. Consequently, companies will undoubtedly go out of business and jobs will be lost.”

    On pay Conor Murphy said:

    “Public sector workers including teachers and nurses should get a fair pay rise. It is not clear from the British Secretary of State’s announcement what is happening with public sector pay. I will urgently be seeking clarity on this matter.”

    On the threat of water charges Conor Murphy continued:

    “The British Secretary of State has also signalled his intention to introduce water charges and rise rates on people and businesses during an inflation crisis.

    “This will only add to the cost of living and the cost of doing business.

    “I stopped the imposition of water charges when I was DRD minister with the full support of Executive colleagues.

    “It is essential that the Executive is restored so that local elected representatives can protect people from the full impact of Tory policy.”

  • PRESS RELEASE : Gas and electricity companies have responsibility to help people struggling in cost of living crisis – Archibald [November 2022]

    PRESS RELEASE : Gas and electricity companies have responsibility to help people struggling in cost of living crisis – Archibald [November 2022]

    The press release issued by Sinn Fein on 23 November 2022.

    Sinn Féin MLA Caoimhe Archibald has said gas and electricity companies have a responsibility to help people struggling with the cost of living crisis.

    Describing the new ‘energy charter’ signed up to by electricity and gas suppliers here as a positive initiative, the party’s economy spokesperson said:

    “Many workers and families are struggling in the cost of living crisis this winter and soaring energy bills have put huge pressure on people.

    “Companies clearly have a role in supporting people through this crisis and have a responsibility not to make things worse by being inflexible or punitive.

    “The new ‘energy charter’ announced today is a positive initiative and will hopefully provide relief to some of those struggling.

    “While it is a voluntary charter, all suppliers have signed up to it and the hardship fund, measures to support those on care registers and a single point of information are practical things that can help.

    “Anyone who is struggling should make contact with their supplier as early as possible and contact the Consumer’s Council if they need help.

    “Sinn Féin will continue to work with the Utility Regulator, Consumer’s Council and local suppliers to ensure people are getting the help they need and companies are playing their part in supporting them.”

  • PRESS RELEASE : British government should bin its cruel and callous Legacy Bill – John Finucane [November 2022]

    PRESS RELEASE : British government should bin its cruel and callous Legacy Bill – John Finucane [November 2022]

    The press release issued by Sinn Fein on 23 November 2022.

    Sinn Féin MP John Finucane has called on the British government to bin its ‘cruel, callous and offensive’ Legacy Bill and attempts to block families’ access to truth and justice.

    The north Belfast MP also welcomed comments from church leaders who said that the Bill will not achieve any of its objectives and will prevent relatives of victims from getting investigations.

    Speaking from London after protests against the Legacy Bill held in Belfast, Derry and the British capital today, John Finucane said:

    “The British government’s Legacy Bill will essentially pull down the shutters on hundreds of victims and families who are campaigning for truth and justice.

    “Seeking to prevent families from exercising their right to seek truth and justice for their loved ones is cruel, callous and offensive.

    “There has been widespread opposition to this legislation, not only from victims and families, but also political parties, human rights experts and senior political figures in Europe and the US.

    “Only today church leaders in the north have also said that the Bill will not achieve any of its objectives and will prevent relatives of victims from getting investigations which are human rights compliant.

    “It’s simply not good enough that the British government wants to cover up its role in the conflict and let its own state forces, who killed Irish citizens, off the hook.

    “I joined campaigners in London today, to make it clear this flawed legislation once again must be scrapped and the legacy mechanisms agreed at Stormont House implemented in a human rights complaint manner.”